| Cancer registries should
first examine the sources used to identify malignant CNS tumors
and expand the procedures to include non-malignant CNS tumors.
Since surgery is often the treatment for CNS tumors of all
behaviors, pathology reports are an excellent casefinding
source. Inpatient and outpatient surgery logs should also
be reviewed. Many patients with CNS tumors of all behaviors
are treated with adjuvant radiation therapy and review of
radiation oncology appointment logs is a way to identify these
cases.
If the hospital has a gamma/cyber knife center, review logs
and schedules as part of casefinding. Gamma/cyber knife
is becoming a common treatment for non-malignant CNS tumors.
Hormone therapy and immunotherapy are medical treatments
given for both non-malignant and malignant CNS tumors.
Central cancer registries have additional casefinding sources.
Freestanding radiation therapy centers, freestanding MRI centers,
and freestanding gamma/cyber knife centers not associated
with a hospital, are a case ascertainment source for CNS cases.
Central cancer registries should check with the licensing
board in their state/region to ensure identification of all
facilities using nuclear sources for treatment. Freestanding
oncology centers are another source of information for central
registries.
The facility disease index is one source of casefinding utilized
by cancer registrars and central registry staff. Data is stored
in the index by ICD code. At this time, facilities in the
United States continue to assign ICD-9-CM codes to final diagnoses.
The ICD-9-CM codes shown below should be added to casefinding
lists to identify non-malignant CNS tumors through the facility
disease index.
ICD-9 Casefinding Codes |
| 225 |
Benign neoplasm of brain and other parts
of central nervous system |
| |
|
| 225.0 |
Brain |
| 225.1 |
Cranial nerves |
| 225.2 |
Cerebral meninges; meninges, NOS; meningioma |
| 225.3 |
Spinal cord; cauda equina |
| 225.4 |
Spinal meninges |
| 225.8 |
Other specified sites of nervous sytem |
| 225.9 |
Nervous system, part unspecified |
| |
|
| 227.3 |
Benign neoplasm of pituitary gland and craniopharyngeal
duct (pouch) |
| 227.4 |
Benign neoplasm of pineal gland/body |
| |
|
| 237 |
Neoplasm of uncertain behavior of endocrine glands and
nervous system |
| 237.0 |
Pituitary gland and craniopharyngeal duct |
| 237.1 |
Pineal gland |
| 237.5 |
Brain and spinal cord |
| 237.6 |
Meninges (NOS, cerebral, spinal) |
| 237.7 |
Neurofibromatosis
237.70 Unspecified
237.71 Type I (von Recklinghausen's disease)
237.72 Type II (acoustic neurofibromatosis) |
| 237.9 |
Other and unspecified parts of nervous system; cranial
nerves |
CNS cases may also be identified through data exchange with
other central registries and through the death clearance process.
Below the ICD-10 casefinding codes for death certificates.
ICD-10 Casefinding Codes (for death
certificates) |
| D32 |
Benign neoplasm of meninges |
| D32.0 |
Cerebral meninges |
| D32.1 |
Spinal meninges |
| D32.9 |
Meninges, unspecified/NOS |
| |
|
| D33 |
Benign neoplasm of brain and other parts of central
nervous system |
| D33.0 |
Brain, supratentorial |
| D33.1 |
Brain, infratentorial |
| D33.2 |
Brain, unspecified |
| D33.3 |
Cranial nerves |
| D33.4 |
Spinal cord |
| D33.7 |
Other specified sites of nervous system |
| D33.9 |
Central nervous system, part unspecified |
| |
|
| D35 |
Benign neoplasm of other and unspecified endocrine glands |
| D35.2 |
Pituitary gland |
| D35.3 |
Craniopharyngeal duct |
| D35.4 |
Pineal gland |
| |
|
| D42 |
Benign neoplasm of meninges |
| D42.0 |
Cerebral meninges |
| D42.1 |
Spinal meninges |
| D42.9 |
Meninges, unspecified/NOS |
| |
|
| Q85.1 |
Neurofibromatosis
(non-malignant); (von Recklinghausen's disease) |
| |
|
| D43 |
Neoplasm of uncertain or unknown behavior of brain and
central nervous system |
| D43.0 |
Brain, supratentorial |
| D43.1 |
Brain, infratentorial |
| D43.2 |
Brain, unspecified |
| D43.3 |
Cranial nerves |
| D43.4 |
Spinal cord |
| D43.7 |
Other specified sites of nervous system |
| D43.9 |
Central nervous system, part unspecified |
| |
|
| D44 |
Neoplasm of uncertain or unknown behavior
of endocrine glands |
| D44.3 |
Pituitary gland |
| D44.4 |
Craniopharyngeal duct |
| D44.5 |
Pineal gland |
In summary, listed below are some important casefinding sources:
Disease indices
Surgery logs
Diagnostic imaging
Radiation oncology
Neurology clinics
Medical oncology
Autopsy reports
Pathology reports
Freestanding radiation therapy centers
Freestanding MRI centers
Freestanding gamma/cyber knife centers
Freestanding oncology centers
Data exchange with other central registries
Death clearance process
 |
