In 2002, 21 state central cancer registries collected data on all CNS tumors, regardless of behavior. In those states, the impact of collecting all CNS primary tumors may be minimal because the cases are already part of the case load.

If the registry’s reportability definition for CNS sites is not the same as the definition in the public law, the definition will have to be changed to include these cases as required for reporting.

The central registries that do not currently collect non-malignant CNS tumors will have to make sure that their reporting law allows them to include these cases. If it does not, the state reporting law may have to be changed or amended. All cancer registries will have to use the same definition for brain-related tumors, implement data edits created for non-malignant CNS tumors, and report rates.