Pediatric Cancer Registries

The National Childhood Cancer Registry allows multiple facilities to share cancer data such that there are adequate numbers of cases to conduct quality research.

The Childhood Cancer Data Initiative (CCDI) provides a platform to gather clinical and research data to identify improved treatment options, preventive measures, enhance quality of life and survivorship for childhood cancers.

The Global Registry of COVID-19 in Pediatric Cancer is formed via a collaborative effort of St Jude Children’s Research Hospital and the International Society of Paediatric Oncology (SOIP) to have a global registry to learn about the impact of COVID and pediatric cancers. Global reporting to the registry is requested “at initial presentation of the case and at 30- and 60-days post-diagnosis follow-up”.

Many hospitals that treat pediatric cancers also house pediatric cancer registries.

Updated: December 11, 2023