Review: Data Collection

Data Collection focused on cancer data, answering the following questions:

  1. What data are collected?
  2. How are data collected?
  3. How are data handled?

You have learned that cancer data collected by cancer registries can be put into four categories: demographic, tumor (cancer) identification, treatment, and outcome (follow-up). The demographic information identifies the cancer patient; the cancer information identifies the malignancy; the treatment information is about the various options selected to treat the cancer patient; and the outcome information consists of detailed information after the cancer diagnosis and treatment such as the cancer status and the patient's vital status.

You have also learned how cancer data are collected. The process begins with the diagnosis of cancer. In most cases, the data collection does not end until the patient dies. Although facilities that accept and treat cancer patients may be required by law to report cases and provide cancer data to a central cancer registry, cancer registrars also go out and visit hospitals and clinics to collect timely and quality cancer information.

To protect privacy and confidentiality of cancer patients, physicians, and health care facilities, relevant regulations, policies, and laws are strictly implemented to guide the handling of information in cancer registries.


Go to the quiz if you want to test yourself on the material you learned in this section. The quiz is a self-assessment tool and no records are kept. The feedback will let you know if you have answered the questions correctly. You can take the quiz as many times as you want.

Click here to take the quiz.