Special Cancer Registries

Some special cancer registries are established to collect and maintain data on a particular type of cancer. For example, the Roswell Park Familial Ovarian Cancer Registry is a special cancer registry that collects cancer information from those families with two or more relatives having ovarian cancer. Other special cancer registries include the Central Brain Tumor Registry of the United States, Colon Cancer Family Registry, and Lung Cancer Registry. These special cancer registries often provide educational opportunities for those who want to learn more about a particular type of cancer and support for those who may suffer from it.

The National Cancer Database (NCDB)

The National Cancer Database is a registry that is sponsored by the American College of Surgeons and the American Cancer Society jointly. Clinical oncology data is submitted from Commission on Cancer accredited cancer programs. The data are used to track and analyze patients’ treatment and outcomes with malignancies and CNS tumors.

Veterans Affairs Central Cancer Registry (VACCR)

The Veterans Affairs Central Cancer Registry captures and stores cancer registry data from 132 VA Medical Centers. Detailed data collected includes demographics, extent of disease, cancer identification, outcomes and first course of treatment.

Department of Defense Cancer Registry Program

In fiscal year 2019, the Department of Defense transitioned from ACTUR which was a government off-the-shelf registry system to a modernized Commercial-Off-the-Shelf (COTS) solution. Over a two-year period 126 military treatment facilities and 8 CoC accredited treatment centers were transitioned to the new cloud-based system. The new system improved workflows as well as improved reporting for both research and accreditation purposes.

Updated: December 11, 2023